Dr. Sarah Morrow shares her perspective on the importance of communication between people living with MS and their neurologists and care teams when it comes to the complex journey from relapsing remitting multiple sclerosis (RRMS) through the secondary progressive stage of the disease. She is joined by Gaby Mammone who was diagnosed with RRMS 18 years ago. Gaby shares how her symptoms have progressed over time and why she believes tracking both her physical and cognitive symptoms is important, as well as increasing her knowledge about her disease at this stage.
“Often, when patients are given the diagnosis of secondary progressive MS, they feel hopeless or as if there’s nothing more that can be offered. And I think that’s a misunderstanding of the disease process overall. There’s still so much we’re learning about MS—no matter the stage of the disease, whether it’s progressive or relapsing, there’s still so many scientific advances being made.” – Dr. Sarah Morrow
“We are our best advocate. As I progress it’s very important that I increase my knowledge. I speak with newly diagnosed people very often, and sometimes they ask me about collaboration and collaborating with their health care team. And I would have to say that being prepared is very important before you actually go into an appointment.” – Gaby Mammone
To learn more about SPMS and to download a questionnaire to help track your symptoms, visit MyRules.ca.
This segment was made possible through financial support from Novartis Pharmaceuticals Canada Inc.
Dr. Sarah Morrow
Neurologist and Director of the London (Ontario) MS Clinic, Western University
Founder and Director, MS Cognitive Clinic, Parkwood Institute
Diagnosed with RRMS in 2004